Dinesh Thapa on needing a second transplant

Name: Dinesh Thapa, 25

Date of Transplantation:

Donor: Mother

Place of Transplantation: Bir Hospitals, NAMS, Nepal

 Dinesh Thapa is an employee at Aarogya Foundation whose story has saddened the entire Aarogya family. Dinesh became aware of his kidney disease in 2062 at which time transplantation in Nepal was just a far off dream. Unable to gather sufficient funds to go to India for treatment, Dinesh spent about 3 years in Nepal undergoing dialysis which is not only a financial encumbrance but also time-consuming enough to render one’s life centered around one’s disease.  At the end of the three years, Dinesh’s family had sold whatever land they owned but Dinesh saw no hope of full recovery from this disease that had become a curse for him and his family. Finally in the year 2065, transplantation started in Bir Hospital where Dinesh was the 7th patient to have a transplant at the subsidized cost of NRs. 3 lakhs. His mother had donated her kidney to give her son a second chance at life, and it seemed to have worked. After his transplant in 2065, Dinesh had been volunteering at Bir Hospital and thereafter at Aarogya Foundation. He has been very involved in bringing the transplant community together through Aarogya and has worked hard to ensure that all the activities carried out by Aarogya are successful.

Unfortunately, Dinesh’s transplanted kidney is no longer functioning; he has to start over again. Dinesh has returned to the cycle of Dialysis everyday although now the Government of Nepal is providing free dialysis to Kidney patients for a limited period of time. This is a huge change in Nepal’s health sector, and one that all members of Aarogya including the entire transplant community, have brought through their relentless push for the betterment of their lives. Free dialysis, however, is just a small start to bettering the lives of kidney patients. Even with dialysis, Dinesh’s life has not returned to its former stability as dialysis takes up 3 days a week so his time for his family, for work at Aarogya has already decreased significantly. A second transplant is what Dinesh and Aarogya are working towards, but with no other member of his family being able to donate their kidney, Dinesh can only hope that cadaveric donor transplantation begins soon in Nepal.

As disheartening as Dinesh’s case is, it has brought the transplant community closer. They are all willing to help Dinesh financially for his second transplant by contributing as much as each of them can and perhaps even more importantly, the transplant community remains a support system, a beacon of hope and optimism for Dinesh in these times of trouble.

Some insight on Aarogya through Dinesh: (translated from Nepali)

“Aarogya has educated patients, taught them how to live, or more importantly taught them that they can live full and happy lives. Contrary to what society believes, patients are not useless, they can still contribute to the betterment of society, and they can still support their families and live healthy normal lives.”

“Through activities like the transplant games, Aarogya has bridged the gap between the general public and transplant patients. Social exclusion is slowly wilting away due to such great interaction programmes.”

“Knowledge about one’s ability has helped patients become independent and self-sufficient. However, employment and financial independence of transplant patients is still an area that the Government of Nepal and Aarogya should work towards because patients who come from poorer backgrounds are usually uneducated and require training to find jobs. In fact, it would be better if the government gave jobs instead of offering compensation because the money won’t last whereas if patients are trained in a certain field they can forever use their skill to remain self-sufficient.”

“Aarogya has opened up the eyes of many transplant patients. For example, sending patients to the World Transplant Games has given them an opportunity, one that they would never have had, to see a different side of the world, to meet people from all over the globe and to compete on a huge stage. Besides the games, Aarogya has made life easier for future transplant patients who can now readily access tests such as the HLA lab which was previously unavailable in Nepal. More people are now aware that kidney diseases exist and they recognize symptoms too.”

Thoughts on how the Government and Aarogya can help:

  • Government should help patients if they require a second transplant. They should pay up to half the cost of the transplant in order to help the patient financially.
  • For transplant patients, the government should provide free medicine and free general tests to lift their financial burden
  • Aarogya could run a free OPD especially for transplant patients every month
  • Aarogya could organize a regular meet and greet for patients to help them share their stories

Our Events

6th Nepal Transplant Games – 2072
6th Nepal Trans...
  • at 9-10 pm
  • Dasharath Stadium
  • 09
  • Nov
4th Nepal Transplant Games
4th Nepal Trans...
  • at 5 am - 5 pm
  • Dasrath Stadium in Kathmandu
  • 09
  • Nov
HLA Lab Inauguration
HLA Lab Inaugur...
  • at 11pm
  • Kathmandu
  • 11
  • Nov